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Spinal Muscular Atrophy       

SMA Warriors

SMA Angels

Deirdre Medina 8/7/07-10/22/12

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Deirdre Medina 8/7/07-10/22/12
Deirdre Medina Deirdre was born in Puerto Rico. She had a respiratory arrest at 4 months, and was diagnosed with SMA Type 1 in the hospital. She was intubated and the doctors gave no hope for her survival. We fought to get a catastrophic funds air ambulance, and she was taken to UMDNJ where the PICU doctors and DR. Bach saved her life. She was extubated to bipap on the third day of her arrival! She had to stay in NJ to get all the care that would have not been possible back in her homeland. It was a really hard thing to do, as we left all our lives back home (friends, family, jobs, pets...)... but it was all worth it. Four years later, Deirdre is a happy, sassy and very demanding Diva. She is very inquisitive, uses eye-gaze to communicate, loves Disney movies and Wonderpets, doing arts and crafts, watching book readings in You Tube, and going to field trips. She recently asked to go to an animation studio, and so she went to meet the Little Airplane crew and to learn how the Wonderpets show is created! She loves aquatic animals, has a pet turtle, and enjoys playing with her Figit Friend. She will go in Summer to the Camp Jr at the Newark Museum, will turn 5 in August, will start Kinder this Fall, and by the end of the year she would go to meet Pocahontas and Mulan at Disney. Deedee doesn't let SMA slow her down or stop her. She can do anything she wants, and we make sure to give her the tools to do so. Where there is a will, there is a way. Deirdre's website: Here's a pic of Deedee at the Ability Expo on May 5th.
Posted on May 14, 2012

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