Spinal Muscular Atrophy

Brittany Roberts

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Please meet my new friend Brittany, she is pretty AMAZING!!! Hi my name is Brittany and I have SMA. I was born July 15th 1989. I was 18 months old when my parents found out I had SMA type 2 and the doctor said I would do no more then what I could then and I wouldn't live very long but I guess I proved them wrong. I was 12 when I had my surgery to correct scoliosis I was 180 degree curve and they said I had a 30 percent chance of surviving because my lungs were so week they thought I would be on life support forever. That scared my mom so she got in touch with Dr Bach. We drove up to New Jersey to meet him and we learned how to use the cough assist machine and the ambu bag. I couldn't afford the cough assist but he gave me an ambu bag to take home so I could get my lungs ready for the surgery. I had my surgery August 18th 2001 and I got off life support an hour after surgery. Then when I was 18 I decided it was time to get a cough assist machine of my own and I wanted to make sure anyone who needs one could get one so I decided to go after the government to get the cough assist funded and I succeeded. I was the first person in New Brunswick Canada to have a cough assist and now anyone who needs one can get one. I'm now 23 years old and live a pretty good life I'm an artist and I'm looking into getting a job as a motivational speaker. I hope the doctor's find a cure soon but in the mean time I won't let my illness stop me I will live my life as best I can
Posted on October 3, 2012

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